We need some good thoughts

tallrd

Member
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03 MSP Mica #369
I normally post on here about car stuff, but this one is about my personal life because my wife and I need some good thoughts sent our way.

Her and I are expecting twins, and up til today things were going fine (she's 21 weeks along--40 wks is full term). However, my wife was meassuring too large for this stage in pregancy and the doctors were concerned. Today, they found her to have "Twin to Twin Transfusion Syndrome." You've likely not heard of it (unless you are in the medical field) b/c it's very rare. Out of ~4 million pregnancies a year, ~6000 have this. That's .0015% of all in the US annually.

Essentially, there is one placenta for both twins (unusual for even twins). The shared placenta has enabled vesils to form which instead of the placenta feeding both babies, one baby feeds off the other using those vesils that aren't supposed to be there. This causes one to grow too much and to produce too much urine (amniotic fluid) and the other to stop growing and not produce anough fluid. The one with too much can develop problems from too much pressure from the excess fluid in it's little sack, and the other can develop problems from the lack thereof (imagine sitting at the bottom of a 10 foot deep pool for an extended period of time, or having to do a marathon at 10,000 ft --one's too much pressure, and the other's too little).

The risk for loss of one or both babies is more than we'd hoped for. The good news is there is treatment if bedrest and tons of protien drinks don't help (as they think they *might*). The doctor best known in the US for doing this treatment (intro uteran surgery that is) is 45 minutes away. However, there are, yet more risks with surgery.

Soooo, my wife was ordered on bedrest for the remainder of the pregnancy (3 months).

To her, I am positive, optimistic, and helpful b/c we also have a 3 year old son and I am the man who has to keep the house running and the bills paid. However, inside I am (pardon the language) freaking the **** out.

I'm presonally not very religious, but I am spiritual. No matter what you believe, please send some positive thoughts our way.

Even if nobody replies, I feel better having written this.
 
hey man. not a lot of stuff gets to me but i'm a little saddened to read this. i know the next few months are gonna be tough but you just gotta keep your head up. it goes without say that you have my prayers
 
Damn man! thats not good at all! my thoughts go out to you. That has to be a hard thing to deal with but hang in there
 
We have twins and my wife had to quit her job (she's a midwife! Very ironic:D ) four months into the pregnancy for health reasons (although different from yours) and take up some bedrest. Luckily the twins were born ok and big too!

So, I can understand a little of what you're going through right now. I'm not a religious person but my wife is, so I will ask her to remember you and your family in her prayers.

My own two will be 20 in June and in fact my son, 6' 5", bearded, hairy, Guiness-drinking, grunty thing that he is, is sitting behind me as I type this. His sister is still in bed (and it's 1.30pm here! :( ).

You wait and see. It won't seem too long before your own twins are doing something similar

Good luck and all the best!
 
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You got it brother, I truly hope everything works out the best for you guys.
 
you and your family will be in my thoughts and prayers.
 
your support means the world to me everyone. I have close friends locally of course, but this is my school here on the forums, and you are my classmates.

We may end up flying to Tampa, FL as soon as tomorrow night to see a Doc with a less invasive surgery, and still high success rate. It's so surreal I can't even explain it. It's like I'm in a movie that someone else is writing.

Off to the garage to put on the cf hood. It's something to help keep my thoughts of this at bay for a while, and my wife knows it's my therapy in a way.
 
You and your family are in my thoughts and prayers. Best of luck for a healthy full term pregnancy.
 
I can kinda relate...my wife was put on bedrest the last 3 months of her pregancy with our son as well. She started out with a cold which went into walking pneumonia. So the Drs ordered her to stay in bed until delivery. I know that is no where near what you are experiencing but I know the feeling of worrying about your loved ones. My thoughts and prayers go out to you and your family!
 
Our Doc isn't in the office yet, and I couldn't sleep so I figure I'd update you all.

I certainly am having trouble with believing this as events unfold, but today we are finalizing arrangements to take a US Air Ambulance (a flying hospital room on a Leer jet) down to Florida to get this surgery. Due to the variables/stress of flying commercial potentially complicating things further this is the safest route to go. Believe it or not, our insurance will cover it. As soon as I get a hold of the doc to ensure they sent the auth to our insurance company for the flight, we on the tarmac. If that doesn't happen, then we have to scramble to get tickets from pt A to pt B asap and hope that we can find something on Easter Weekend (which didn't look good yeterday when my mother in law checked avail flights).

As if this weren't enough, lastnight on the way to pick up our 3 year old from our friends, I got caught in a hail storm which rained hail the size of chestnuts on my car, and when I arrived home to help make the final arrangements my wife tells me our phone lines were struck my lightning thus eliminating our only method of contacting the necessary docs/ins/etc (cell battery was dead after so much use yesterday). I think the car's ok, but I was unloading quite a lot of "you have got to be f'ing kidding me's" by the time I got home lastnight. Hospital?! Private Jet to hospital in FL?! HAIL STORM?! NO PHONE LINE?! AAAHHHHH!!! Seriously, it's just unbelievable. As if our challenges were not great enough.

I'll let you guys know when I get back wed or thurs how it went.

and a reminder to tell those you love that you love them.
'til next week...
 
May the twins and your wife sail through the surgery easily and without complications, so that your wife can have a safe delivery at term, with all involved healthy and well. And I'll send extra prayers your way to help keep you calm, cool and collected through it all!
 

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